Key takeaways
- In a Baltimore trial of 300 low-income adults 65 and older, a five-month home program called CAPABLE cut difficulty with basic self-care by 30% compared with friendly visits2.
- CAPABLE averaged $2,825 per person, yet Medicare and private insurers don’t typically pay for it14.
- Medicare’s home health benefit requires that you be homebound and need skilled care, and it won’t pay for help with bathing or dressing when that’s the only help you need9.
- An industry survey by Genworth, which sells products to help pay for long-term care, and its CareScout subsidiary put 2024 median costs at $77,792 a year for a home health aide and $70,800 for assisted living12.
- You don’t need a lawyer to name a health care proxy or write a living will, and many states offer free forms, according to the National Institute on Aging13.
Between 2012 and 2016, researchers in Baltimore enrolled 300 low-income adults 65 and older who were struggling with everyday tasks2. Most were women, and most were Black2.
Half got CAPABLE, a home program with up to 10 visits over five months2. An occupational therapist came six times and a nurse four times14. A handyman did up to $1,300 worth of repairs and changes to the home14. Everything aimed at goals the participants chose themselves2.
After five months, the CAPABLE group had 30% less difficulty with basic self-care than a comparison group that got social visits instead2. John Haaga of the National Institute on Aging, which paid for the trial, told KFF Health News that a drug with that effect would get nonstop press coverage1.
Yet Medicare and most private insurers don’t typically pay for programs like this1. That gap is the theme of this article. Independence often rests on ordinary tasks and ordinary help, the kind health insurance often leaves out.
Below, we look at what works, what Medicare and Medicaid pay for, and the planning that keeps your choices in your hands.
Independence lives in everyday tasks
Clinicians sort daily tasks into two groups. Activities of daily living (ADLs) are basic self-care, such as bathing, dressing and using the bathroom8. Instrumental activities of daily living (IADLs) are the jobs of running a household: shopping, cooking, managing money and medicines, and getting around.
The line matters because it often decides who pays. Medicare calls non-medical help with ADLs “custodial care.” It doesn’t cover that care unless you also need medical care8. Medigap policies don’t cover it either8.
CAPABLE enrolled people who had trouble with at least one ADL or two IADLs2. A companion article on physical function covers the tests clinicians use to measure these abilities.
CAPABLE works on the person and the house at once
CAPABLE starts with a question: what do you want to be able to do again? Its developer credits that focus on people’s own goals, rather than their diagnoses, for its results, KFF Health News reported1. The therapist and nurse work on the person’s own skills, while the handyman changes the home around them2.
What the 2019 trial, published in JAMA Internal Medicine, found2:
- Self-care improved. ADL difficulty was 30% lower than in the comparison group.
- Household tasks moved less. IADL difficulty was 17% lower, a gap that could have been chance.
- People noticed. About 82% said the program made their life easier, compared with 43% of the comparison group. About 80% said it helped them take care of themselves, versus 36%.
The gains faded over 12 months1. Dr. Kenneth Covinsky of the University of California, San Francisco, who co-wrote an editorial on the trial, told KFF Health News that follow-up calls or extra visits would probably be needed to keep them1.
A 2023 review in the journal Age and Ageing pooled seven CAPABLE studies with 2,921 low-income older adults3. In the five randomized trials, CAPABLE groups ended up a little under one point better than controls on ADL difficulty scores3.
The reviewers flagged limits3. Follow-up assessments differed from study to study, results varied widely, and participants knew which group they were in. The program also excludes people with moderate to severe dementia3.
Does it save money? An evaluation funded by the Center for Medicare and Medicaid Innovation, published in Health Affairs in 2017, found Medicare spending about $2,765 lower per person per quarter, according to slides presented by CAPABLE’s developer, Sarah Szanton4. Hospital stays didn’t change significantly in that analysis4.
KFF Health News, citing research by Szanton and others, reported nearly $10 in combined Medicare and Medicaid savings for every $1 spent, mostly from avoided hospital and nursing home stays1. Treat both figures as early estimates. We couldn’t check them against the journal, and the slides’ hospital numbers don’t show the drop that explanation implies4.
Can you get it? When KFF Health News looked in early 2019, grants and foundations paid for most CAPABLE programs, which were running in 26 places across 12 states1. Medicaid in two states, Massachusetts and Michigan, had picked up a version for some enrollees1. The developer’s later slides, from 2020 or after, list 34 sites4. Ask your health plan, your state Medicaid office or your local Area Agency on Aging whether something similar is offered near you.
Reablement: short, intense help to relearn daily tasks
Some countries offer “reablement,” also called restorative home care. It’s a burst of help, usually 6 to 12 weeks, from a team that sets goals with you and aims to make you as independent as possible5. The hope is that you need less help later.
The evidence is thin. A 2016 Cochrane review, from the independent network that pools medical research, found only two trials, with 811 people in Western Australia and Norway5. Its searches ran through 20155.
Function improved slightly with reablement, but the reviewers rated that evidence very low certainty5. In the larger trial, fewer people were later approved for higher-level personal care, and costs over two years averaged about 19,900 Australian dollars, versus 22,800 with usual care, though the authors were unsure how much that gap mattered5. They concluded that reablement’s value can’t yet be confirmed or ruled out5.
A 2021 umbrella review by Ireland’s Health Research Board, which drew on 13 systematic reviews, reached a similar view6. It saw positive signals for function, with the clearest benefit being less need for ongoing home care6. Evidence on quality of life, hospital use and costs was inconclusive6.
In the U.S., the closest match may be Medicare home health, which says its care can help you regain independence and become more self-sufficient9. Note the wording, though: Medicare lists “continued” occupational therapy, not occupational therapy on its own, among the needs that qualify you9. Ask the agency how that applies to you.
Hearing aids moved onto store shelves in 2022
Since October 17, 2022, adults 18 and older with perceived mild to moderate hearing loss can buy hearing aids over the counter, with no exam, hearing test or prescription7.
About 30 million people in the U.S. have hearing loss, and only about one in five people who could benefit seeks help, the FDA said in its rule7. The agency’s rule also cited research tying treatment of hearing loss to less cognitive decline and depression and to more social participation7. Our article on loneliness covers a major hearing trial.
The FDA set limits on how loud the devices can get7. It also requires a label that tells buyers to see a doctor, preferably an ear, nose and throat specialist, if they have certain problems before or after buying7. The FDA’s discussion of the rule names ear drainage, ear pain, balance problems and ringing in one ear among them7. Anyone under 18 should see a doctor and not use OTC aids7.
A later article on hearing and vision checks covers when to get tested.
What Medicare covers at home, and the gap it leaves
Home health. Medicare’s home health benefit has strict rules. You qualify only if all of these are true9:
- A doctor or other allowed provider oversees your care under a plan reviewed regularly.
- You need part-time or intermittent skilled nursing (other than blood draws), physical therapy, speech therapy or continued occupational therapy.
- You’re homebound, meaning leaving home takes help or a major effort. Trips for medical care, adult day care, religious services or the occasional outing are allowed.
- You use a Medicare-certified agency, and a provider documents a face-to-face visit about the reason you need care.
When you qualify, a home health aide can help with bathing and dressing, but only while you’re also getting skilled care9. Aide and nursing time combined must stay under 8 hours a day and at or below 28 hours a week, with up to 35 in limited cases9.
Medicare home health doesn’t cover 24-hour care, delivered meals, shopping, cleaning or laundry9. It also doesn’t cover personal care when that’s the only help you need9. The booklet does say care may help you keep your current level of function or slow a decline, not only improve9. Our article on trainers and physical therapists explains the court settlement behind that rule.
Before giving you a service Medicare probably won’t cover, the agency must give you a written notice called an Advance Beneficiary Notice9. Read it before you sign.
Long-term care. Medicare generally doesn’t pay for long-term nursing home stays10. Most people start by paying out of pocket10. Medicaid can help people with limited income and savings, and its rules vary by state810. Long-term care insurance and some life insurance policies can also help pay10.
PACE. The Program of All-inclusive Care for the Elderly is meant for people who need nursing-home-level care but can live at home with support. To join, you must be 55 or older, live in a PACE service area, be certified by your state as needing nursing-home-level care, and be able to live safely at home with PACE’s help11.
PACE covers all medically necessary Medicare and Medicaid services, plus extras the care team approves11. That includes adult day care with meals, home care, drugs, dental care and rides11. With Medicaid, there’s no monthly premium; with Medicare alone, you pay one11. You must use the program’s own network11.
What help costs when you pay yourself
Widely cited cost figures come from an industry survey. Genworth, a company that sells products to help families pay for long-term care, and its CareScout subsidiary contacted more than 140,000 providers and completed more than 15,000 surveys in late 202412. Here are their national medians for 202412:
| Type of care | Median yearly cost | Change from 2023 |
|---|---|---|
| Home health aide | $77,792 | Up 3% |
| Homemaker services | $75,504 | Up 10% |
| Adult day health | $26,000 | Up 5% |
| Assisted living | $70,800 | Up 10% |
| Nursing home, shared room | $111,325 | Up 7% |
| Nursing home, private room | $127,750 | Up 9% |
For scale, by our math, CAPABLE’s average cost of $2,825, a 2019 figure1, equals less than 4% of a year’s median home health aide bill12. The survey also reports figures for 431 local regions, so check yours12.
Plan now, so others know your choices
Planning protects your independence even if you someday can’t speak for yourself. The National Institute on Aging (NIA) says talking with loved ones is the most important part13.
Then put your wishes in writing. NIA describes two main documents13:
- A living will tells doctors which treatments you want or don’t want, and when.
- A durable power of attorney for health care names a proxy to make medical decisions if you can’t.
These documents take effect only if you can’t communicate13. Your proxy can act only then, and you can limit their power14. NIA suggests choosing someone you can talk with openly, who will honor your wishes, can handle family disagreement and can get to you14. Ask them first, and name a backup14.
You don’t need a lawyer13. Many states offer free forms, and your local Area Agency on Aging can help; the Eldercare Locator at 800-677-1116 will connect you13. Review your documents at least once a year and after big changes, such as a move or a new diagnosis13.
Skipping this has a cost. Without a proxy, state law decides who speaks for you, usually a spouse, parent or adult child, and an unmarried partner may be left out13. In one study NIA cites, people guessed wrong on nearly one in three end-of-life choices for a loved one13.
Plan for money decisions, too. A legal aid office or a lawyer can explain the options in your state.
Your independence plan
This is our own tool. Fill in the “your status” column now, then revisit it once a year, or sooner after a hospital stay or a fall.
| Task area | Early signs to watch | Your status | Supports to line up now | Who usually pays |
|---|---|---|---|---|
| Bathing, dressing, toilet | Avoiding the tub; struggling with buttons | Occupational therapy; home changes like a CAPABLE-style repair2 | Medicare only alongside skilled care9; otherwise you, Medicaid if eligible, or insurance810 | |
| Meals and shopping | Empty fridge; weight loss; skipped meals | Delivery, a shopping helper, a meal program | Not Medicare home health9; PACE day centers serve meals11 | |
| Medicines | Missed doses; confusion about pills | Pharmacist review; pill organizer | Ask your pharmacist or plan | |
| Getting around | Stopped driving; missed visits | Ride options; a companion article on mobility | PACE includes rides11 | |
| Hearing | Asking people to repeat; avoiding groups | OTC hearing aid or hearing test; see a doctor for warning signs7 | You, for OTC devices | |
| Home upkeep and safety | Clutter; broken steps; falls | Handyman repairs; a home safety check | Medicare won’t pay for cleaning9; CAPABLE funding varies1 | |
| Daily hands-on help | Needs help most days | PACE if eligible11; home care agency | Medicaid or PACE if eligible; otherwise private pay101112 | |
| Big decisions | None; plan while you’re well | Living will and health care proxy13 | Free state forms13 |
Self-reliance, built into the house
Natural health prizes self-reliance, and CAPABLE puts that value at its center. It asks what you want to do, then builds your skills and fixes your surroundings so you can do it2. A handyman counts as part of the care team. So does your own judgment.
Planning documents carry the same value forward. They let your choices outlast a crisis instead of leaving them to your state’s default rules1314.
How the evidence stacks up:
| Approach | What the research shows | Evidence level |
|---|---|---|
| CAPABLE for difficulty with self-care | 30% less ADL difficulty at 5 months in one trial; benefit in pooled trials, with wide variation23 | |
| CAPABLE for household tasks | Smaller gain that could be chance in the main trial; a small pooled gain across trials23 | |
| CAPABLE lowering Medicare costs | One federally funded evaluation, as presented in the developer’s slides, plus a savings estimate reported by KFF Health News14 | |
| Reablement for daily function | Two trials; very low certainty56 | |
| Reablement for reducing later home care | Positive signals across several reviews56 |
Questions readers ask
Will Medicare pay for an aide to help my mother bathe?
Only as part of home health, while she’s also getting skilled care and meets the homebound rule9. If bathing help is all she needs, Medicare won’t cover it9. Medicaid, PACE or private pay may fill the gap, depending on her income and state1011.
How do I find a program like CAPABLE?
It isn’t everywhere, and funding has come mostly from grants and some Medicaid programs1. Ask your health plan and your local Area Agency on Aging, which you can reach through the Eldercare Locator at 800-677-111613.
Do I need a lawyer for an advance directive?
No. NIA says a lawyer can help but isn’t required, and many states offer free forms13. Give copies to your proxy and your doctors.
Is an over-the-counter hearing aid right for me?
OTC aids are meant for adults with perceived mild to moderate hearing loss7. If you have ear pain, drainage, balance problems or ringing in one ear, see a doctor first, as the FDA-required label advises7.
The bottom line
Independence is lived at home, in the bathroom, the kitchen and the checkbook. Of the approaches we reviewed, programs that work on the person and the house together have the most promising evidence, but few insurers pay for them, and Medicare’s home health benefit is narrow.
So plan on two tracks. Line up help early, starting with an occupational therapist, a hearing check and a clear look at what Medicare, Medicaid or PACE would cover. And put your health care wishes and your proxy in writing while you can.
Related reading
About this article
This article was researched using Medicare and FDA documents, National Institute on Aging guidance, a randomized trial, Cochrane and other evidence reviews, journalism and an industry cost survey, all listed below. It was reviewed in October 2026. It is general education and not medical, legal or financial advice.
Sources
- Graham J. “Frail Seniors Find Ways To Live Independently.” KFF Health News, January 31, 2019. kffhealthnews.org
- Szanton SL, Xue QL, Leff B, Guralnik J, Wolff JL, Tanner EK, Boyd C, Thorpe RJ Jr, Bishai D, Gitlin LN. “Effect of a Biobehavioral Environmental Approach on Disability Among Low-Income Older Adults: A Randomized Clinical Trial.” JAMA Internal Medicine, 2019;179(2) (abstract, Drexel University research record). researchdiscovery.drexel.edu
- Rahmati M, Keshvari M, Koyanagi A, Yon DK, Lee SW, Shin JI, Smith L. “The effectiveness of community ageing in place, advancing better living for elders as a biobehavioural environmental approach for disability among low-income older adults: a systematic review and meta-analysis.” Age and Ageing, 2023;52(4):afad053. pubmed.ncbi.nlm.nih.gov
- Szanton S. CAPABLE presentation slides (citing Ruiz S, et al., Health Affairs, 2017). Maryland Philanthropy Network, undated (circa 2020). marylandphilanthropy.org
- Cochrane A, Furlong M, McGilloway S, Molloy DW, Stevenson M, Donnelly M. “Time-limited home-care reablement services for maintaining and improving the functional independence of older adults.” Cochrane Database of Systematic Reviews, 2016, CD010825.pub2. pubmed.ncbi.nlm.nih.gov
- Keane M, Cagney O, Cochrane A, Lee C, Farragher A, Long J. “Reablement in the home for people aged 65 years and over.” Health Research Board, Dublin, June 2021. hrb.ie
- U.S. Food and Drug Administration. “Medical Devices; Ear, Nose, and Throat Devices; Establishing Over-the-Counter Hearing Aids.” Final rule, Federal Register 87(158), August 17, 2022. govinfo.gov
- Medicare.gov. “Long-Term Care Coverage.” Centers for Medicare & Medicaid Services, accessed October 2026. medicare.gov
- Centers for Medicare & Medicaid Services. “Medicare & Home Health Care.” CMS Product No. 10969, July 2025. medicare.gov
- Medicare.gov. “How can I pay for nursing home care?” Centers for Medicare & Medicaid Services, accessed October 2026. medicare.gov
- Centers for Medicare & Medicaid Services. “Quick Facts: Program of All-inclusive Care for the Elderly (PACE).” CMS Product No. 11341, December 2025. medicare.gov
- Genworth Financial. “Genworth and CareScout Release Cost of Care Survey Results for 2024.” Press release (industry data), March 4, 2025. investor.genworth.com
- National Institute on Aging. “Advance Care Planning: Advance Directives for Health Care.” NIH, reviewed October 31, 2022. nia.nih.gov
- National Institute on Aging. “Choosing a Health Care Proxy.” NIH, accessed October 2026. nia.nih.gov